Thursday, May 28, 2015

But God

I have a coworker whose favorite phrase is "but God."
Basically, God's plan prevails despite ourselves or the plans of our enemies.
The devil meant this to harm me but God.
I could have died on the way to work today but God.

I'm stealing it for my own today and I can't wait to fill in my own blank.

The doctor said my daughter would never survive outside my body but God.
They said she couldn't live but God.
They said I should end her life and "try again" but God.

Here's the source (emphasis mine):

Ephesians 2: 1-10 (HCSB)

And you were dead in your trespasses and sins in which you previously walked according to the ways of this world, according to the ruler who exercises authority over the lower heavens, the spirit now working in the disobedient.  We too all previously lived among them in our fleshly desires, carrying out the inclinations of our flesh and thoughts, and we were by nature children under wrath as the others were also.  BUT GOD, who is rich in mercy, because of His great love that He had for us, made us alive with the Messiah even though we were dead in trespasses. You are saved by grace!  Together with Christ Jesus He also raised us up and seated us in the heavens,  so that in the coming ages He might display the immeasurable riches of His grace through His kindness to us in Christ Jesus.  For you are saved by grace through faith, and this is not from yourselves; it is God’s gift—  not from works, so that no one can boast.  For we are His creation, created in Christ Jesus for good works, which God prepared ahead of time so that we should walk in them.

We were sin-sick and without hope BUT GOD made a way for us to get to Heaven.  What a thought. 

Wednesday, May 27, 2015

Doing all I can

Lots of folks have told me how strong I am and how my faith is so secure during all of this troubling ordeal.

The truth is that I am not strong at all.  I feel like I'm barely holding on.

The truth is that no matter what healthy foods I eat, vitamins I take or things I give up to help me have a "healthy" pregnancy, nothing will change this diagnosis and prognosis except God.

The truth is that there is absolutely nothing that I can do for my daughter, except pray for her and ask others to do the same.

So that's what I do.  I ask everyone who will listen to me for a second to pray.  I try to be a good mom to Katharine, a good wife to Steven, though I do feel like I'm failing in both since my thoughts are elsewhere.  I do know that if I didn't have my family backing me up this would be near impossible.

The family.  Steven, Katharine, Sarah and Rebecca in the belly.
Print us out, put us on your fridge, share us with your friends and family and church groups.
PLEASE pray for us.  That's all we can do.

Tuesday, May 26, 2015

Starting at the beginning

I have a happy and healthy two year old daughter, Katharine.  She is an amazing blessing.  Without her, I don’t think I could handle all of this.

Last June, I had a miscarriage at 12 weeks.  My baby measured at eight weeks.  I thought that was the hardest thing I could go through but the uncertainty here is almost unbearable.

Just after this past Christmas, I found out I was pregnant again.  I was overjoyed but nervous as well.  Every pain was cause for alarm.

Early on, an ultrasound tech noted that my baby had thickened neck skin which may be an indicator of Down’s Syndrome.  I rejected the further testing but then couldn’t get it out of my head and asked for the screening at my next visit.

My doctor called me and said I had a 10% chance of T18.  He explained what it is and what our chances were.  When my husband asked, he told us he’d never had a patient with this diagnosis come to term.

I am currently 24 weeks pregnant with my daughter, Rebecca Anne.  After further testing, my doctor has confirmed a diagnosis of T18 with 99% certainty.  He referred me to a high-risk pregnancy specialist who did a 3D ultrasound and told us that our baby has a host of medical issues (clubbed feet, clenched hands, small kidneys).  The most troubling thing though is the fact that the left side of her heart isn’t developing properly.  He started explaining how the heart works, etc and I stopped him and asked point-blank if she could live.  He told me she might live a minute or an hour after delivery but would almost certainly die on her birthday.

My doctor agreed to do a c-section which might extend her life a little.

I do believe in prayer and in miracles but every time I go to the doctor it seems like my hope dies a little more.

At this point, if I can just hold her and tell her that I love her I will try to be content with that.